Media Summary: Experts Dr. Michael Wangler and Dr. Mousumi Bose talk about symptom prevalence and symptom management for Our Mission: To improve the lives of individuals with Behind every statistic is a story. Behind every study is a family hoping for more time, more answers, more options. This is why ...

Gfpd Webinar Peroxisomal Disorders 101 - Detailed Analysis & Overview

Experts Dr. Michael Wangler and Dr. Mousumi Bose talk about symptom prevalence and symptom management for Our Mission: To improve the lives of individuals with Behind every statistic is a story. Behind every study is a family hoping for more time, more answers, more options. This is why ... Michael Wangler, M.D., Ph.D. Join Dr. Wangler for a casual and frank discussion about the medical implications of Dr. Mousumi Bose and Pamela Saikali, MS., two of the key individuals involved in collecting and analyzing vital data about ... Have you thought about supporting or hosting a fundraiser for the

Genetics can feel overwhelming—especially when you or someone you love is impacted by rare 15 years. Hundreds of Warriors. One powerful community. Since 2009, the Global Foundation for We now know that there are approximately 10000 rare When a rare diagnosis happens, it can impact all of your family. This presentation shares some of the many challenges and ... Recorded November 14, 2024. Are you or do you know someone who is caring for someone who has complex medical issues ... PANELISTS: Rachel Kassel, M.D., Ph.D. Lauren Draper, M.D. Femke Klouwer, M.D., Ph.D. Carrie Morehouse, Mother of

Join us for inspiring research updates highlighting the progress being made in the fight against

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GFPD Webinar: Peroxisomal Disorders 101

GFPD Webinar: Peroxisomal Disorders 101

What is a

GFPD Webinar: Genetics 101

GFPD Webinar: Genetics 101

Join Dr. Eric Rush,

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GFPD | Symptom Prevalence and Management for Peroxisomal Disorders

GFPD | Symptom Prevalence and Management for Peroxisomal Disorders

Experts Dr. Michael Wangler and Dr. Mousumi Bose talk about symptom prevalence and symptom management for

GFPD Webinar | Considerations for Managing Hearing Loss in Peroxisomal Disorders

GFPD Webinar | Considerations for Managing Hearing Loss in Peroxisomal Disorders

The

GFPD | The Mission of the GFPD | Full Length

GFPD | The Mission of the GFPD | Full Length

Our Mission: To improve the lives of individuals with

Sponsored
GFPD | Patient Registry for Peroxisomal Disorders - How to Webinar - July 2024

GFPD | Patient Registry for Peroxisomal Disorders - How to Webinar - July 2024

This global resource is for all

GFPD | Navigating Neurology in Peroxisomal Disorders

GFPD | Navigating Neurology in Peroxisomal Disorders

Behind every statistic is a story. Behind every study is a family hoping for more time, more answers, more options. This is why ...

2022 GFPD Family & Scientific Conference: Peroxisomal Disorders - A Discussion with Dr. Wangler

2022 GFPD Family & Scientific Conference: Peroxisomal Disorders - A Discussion with Dr. Wangler

Michael Wangler, M.D., Ph.D. Join Dr. Wangler for a casual and frank discussion about the medical implications of

GFPD | The Impact of Peroxisomal Disorders Symptoms: What we learned from the EL-PFDD meeting Part 1

GFPD | The Impact of Peroxisomal Disorders Symptoms: What we learned from the EL-PFDD meeting Part 1

Dr. Mousumi Bose and Pamela Saikali, MS., two of the key individuals involved in collecting and analyzing vital data about ...

GFPD Webinar | Fundraising 101: Small Steps, Big Impact!

GFPD Webinar | Fundraising 101: Small Steps, Big Impact!

Have you thought about supporting or hosting a fundraiser for the

GFPD | Webinar: From Genes to Hope  Unlocking the Power of Genetic Information

GFPD | Webinar: From Genes to Hope Unlocking the Power of Genetic Information

Genetics can feel overwhelming—especially when you or someone you love is impacted by rare

GFPD | From Hope to Progress: Uniting Patient Voices and Research Data

GFPD | From Hope to Progress: Uniting Patient Voices and Research Data

This special

The Global Foundation for Peroxisomal Disorders: 15 Years of GFPD Warriors

The Global Foundation for Peroxisomal Disorders: 15 Years of GFPD Warriors

15 years. Hundreds of Warriors. One powerful community. Since 2009, the Global Foundation for

GFPD | The Impact of Peroxisomal Disorders

GFPD | The Impact of Peroxisomal Disorders

We now know that there are approximately 10000 rare

GFPD | Navigating Family Planning After a Rare Diagnosis

GFPD | Navigating Family Planning After a Rare Diagnosis

When a rare diagnosis happens, it can impact all of your family. This presentation shares some of the many challenges and ...

GFPD Care in Action: Empowering Caregivers Webinar

GFPD Care in Action: Empowering Caregivers Webinar

Recorded November 14, 2024. • Are you or do you know someone who is caring for someone who has complex medical issues ...

2022 GFPD Family & Scientific Conference: Emerging GI Issues in Peroxisomal Disorders - Panel

2022 GFPD Family & Scientific Conference: Emerging GI Issues in Peroxisomal Disorders - Panel

PANELISTS: Rachel Kassel, M.D., Ph.D. Lauren Draper, M.D. Femke Klouwer, M.D., Ph.D. Carrie Morehouse, Mother of

GFPD | December 2025 End of Year Research Update Webinar: Hope and Progress

GFPD | December 2025 End of Year Research Update Webinar: Hope and Progress

Join us for inspiring research updates highlighting the progress being made in the fight against

GFPD |  Mission Part 1:  The Spirit of The GFPD

GFPD | Mission Part 1: The Spirit of The GFPD

The spirit of The